Question #20497
105 days ago
14,092
How to treat caroli disease - #20497
Marium
Hi.....i am a mother of 8 yr old son who is suffering from liver disease f3 fibrosis (by birth Caroli disease)...recently 3 endoscopy had been done (spleen size 15cm)...4 endo vl be done on 21 april 2025...further dr huma arshad(gastero specialist) in lahore suggested shunt surgery i future..kindly guide me so that v avoid this surgery..plz help me
Age: 36
Chronic illnesses: No
Liver
Spleen
100 INR (~1.17 USD)
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Doctors’ responses
I'm really sorry to hear about your son's condition, Marium. Caroli disease is a rare congenital disorder that affects the bile ducts in the liver. It's completely understandable that you're feeling overwhelmed, especially with the mention of shunt surgery.
Given your son's current condition—particularly with F3 fibrosis—it's crucial to take extra care of his liver and overall gut health. The good news is that in many cases, surgery can be delayed with the right medical support, lifestyle changes, and holistic management. I'd like to share a supportive, holistic approach that may help improve your son's condition.
If you are able to arrange these medicines, please consider the following:
Punarnava Tablets – 1 tablet twice a day
Herbal Powder Mix – Combine Kalmegh and Bhumyamalaki powder. Give ½ teaspoon with lukewarm water once or twice daily.
Dietary advise
A liver-friendly diet is essential. Please follow these recommendations:
Low-fat, high-fiber diet to reduce the load on the liver.
Avoid fried, spicy, and processed foods.
Include more fresh fruits and vegetables, especially:
Pomegranate
Apple
Carrot
Boiled or juiced beetroot
Use coconut water, ajwain water, or jeera water to improve digestion.
Incorporate millet-based foods in daily meals.
NOTE -
Keep an eye out for symptoms like fatigue, loss of appetite, yellowing of eyes or skin, disturbed sleep, or changes in behavior.
It's helpful to maintain a record of symptoms before and after each endoscopy.
✅ Final Note
With proper medication, dietary care, and regular monitoring, it is possible to delay or avoid surgery for a significant period. Stay positive—many children with Caroli disease go on to live stable, healthy lives with good care and attention.
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I would suggest to meet ayurvedic practitioner in person, so they can see directly and advice
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Caroli Disease, especially with complications like F3 fibrosis and enlarged spleen, is indeed complex. In Ayurveda, addressing such conditions involves a comprehensive approach considering the unique constitution of the patient, especially focusing on imbalances in doshas like Pitta and Kapha since they play a role in liver and spleen issues. However, it's crucial to emphasize that any natural treatment should not replace surgical advice, especially in severe cases where professional medical suggestions indicate a surgery might be needed.
Firstly, for liver support, you could consider introducing herbs like Kutki (Picrorhiza kurroa), which is known for its liver-healing properties. A decoction could be prepared by boiling 1 teaspoon of Kutki powder in water, and taken once a day. Buk be cautious and consult with an Ayurvedic practitioner for the correct dosage, considering your son's age and condition.
Managing diet is also essential. Opt for a balance that complements his dosha, minimizing foods that aggravate Pitta like spicy and greasy foods, while including bitter foods like dandelion greens or turmeric, which support liver function. Encouraging a diet rich in easily digestible foods, like well-cooked grains and vegetables could be helpful. But, avoid heavy foods like deep-fried items.
Practicing gentle yoga or pranayama might also help improve overall health and reduce stress on liver and spleen. Simple breathing exercises like Anulom Vilom pranayama could be beneficial if practiced regularly. Again, always under supervision or guidance, given your son's age.
Lifestyle adjustments like ensuring adequate rest and avoiding overexertion are important too. The balance between activity and rest should be maintained to avoid straining the body's healing mechanism.
Finally, given the severity of your son's condition, I would encourage you to stay in close consultation with healthcare professionals, both Ayurvedic and allopathic, to ensure a holistic approach that supports his medium and long-term health. Sometimes, surgical interventions might be necessary, and delaying them could pose risks. Constant monitoring by your healthcare provider is essential.
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