Hey You are really a brave person.
1.Brahmi Ghrita 1 tsp with warm milk empty stomach in the morning 2.Ashwagandha churna 1 tsp + shatavari 1 tsp with warm milk twice daily after meals 3.Dashmoola kwath 15 ml with 15 ml water twicce daily after meals 4.Punarnavasava 15 ml with 15 ml water twice daily after meals 5.Chyawanprash 1tsp with warm milk 1 hour before breakfast
For massage with warm oil-Mahanarayan oil + Mahamasha oil
🚫 DON’T: - Avoid raw, cold, dry, or processed foods. - Skip intense exercise, overstimulation, or erratic routines. - Avoid strong purgatives, extreme fasting, or unmonitored chelation. - Minimize exposure to loud sounds, bright lights, and emotional volatility.
Do’s - Practices like Yoga Nidra, Bhakti (devotional singing), and Sattvic journaling can help restore flow. -Nasya- with ksheerabala 101 aavarthi taila 2 drops in each nostril twice daily
Warm Regards Dr.Anjali Sehrawat
Start with Chyavanprash 2tsp once daily before breakfast with milk put Shatavari granules 2tsp in the milk Ashwagandha churan 0-0-1tsp at bedtime with warm milk Giloy ghanvati 1-0-1 after food with water
Hi Bailey, Sorry to hear that You have been diagnosed with so many conditions.
Basically if you want to understand what you are going through, in simple words I can say it as Ojo kashaya - the extreme debilitated feeling which you experiencing.
Along with Doshas there is Dhatu kshaya as well. To give you an exact term right now is not possible because of the brief explanation provided by you.
However you can consult any Ayurvedic doctor for a personalized treatment basically we identify the cause and plan treatment according.
Your picture resembles:
Vata vyadhi (chronic vata disorders with tissue degeneration).
Mamsa dhatu kshaya (muscle and connective tissue wasting/weakness).
Ojas kshaya (loss of deep immunity and vitality).
Sometimes grouped under “Sannipataja” complex disorders, where multiple doshas are involved. Rasayana (rejuvenatives):
Ashwagandha (with warm milk or ghee, if digestion permits).
Bala + milk decoctions.
Shatavari (cooling, nourishing).
Guduchi (immune-strengthening).
Medicated ghee (ghrita):
Brahmi ghrita, Ashwagandha ghrita, or plain cow ghee in very small amounts for lubrication and ojas.
2. Mild Detox (only once stronger)
Not aggressive panchakarma.
Gentle ama-pachana herbs: trikatu in micro-doses, ginger tea, coriander, fennel.
Mold toxicity is seen as ama + dushta kapha → requires slow, long-term balancing.
3. Diet
Warm, unctuous, grounding foods (soups, stews, khichdi). Avoid raw, cold, dry, or hard-to-digest foods. Favor ghee, sesame oil, well-cooked grains, root vegetables.
Hello, It is better to have one on one consultation, if possible face to face. By whatever you have mentioned the treatment called vasthi/basti will be very beneficial along with internal ayurveda medications. The type and duration of the therapy can be decided by the consulting ayurveda physician after a detailed history taking(including dosha vikruti-prakruti pariksha) followed by detail examination through nadi pariksha etc. Take care, Kind regards.
Even without any genes involvement this is not a very curable diagnosis. But in ayurveda we can improve the quality of life with these genetic disorders. What i will suggest you is go to a nearest panchakarma center and start your treatment there 1. Abhyang with ksheer bala tail 2. Nadi savedana 3. Matra basti with ksheer bala tail. 4. Nasya with ksheerbala tail101 And med. Amapachak vati 2BD B F Tab stress com 2HS Shilajit gold cap. 1OD A F.
Connective tissue disorders, like Ehlers-Danlos Syndrome, can be quite challenging in Ayurveda due to their systemic impact on the dhatus, or tissues. In Ayurveda, tissues such as mamsa (muscle) and asthi (bone) are significant, and any “dhatu kshaya,” or loss of tissue strength, could be influenced by doshic imbalances. Given your situation, addressing Vata and Kapha imbalances may be crucial.
Vata dosha is central to movement and nervous system function, so excessive Vata might contribute to the instability and weakness in connective tissues, as well as heightened sensitivity. Kapha, on the other hand, governs structure and stability, and its imbalance can lead either to stagnation or exhaustion of these tissues.
First step, incorporating “Rasayana” practices could be beneficial for strengthening and rejuvenating tissues. “Amla” and “Ashwagandha” are often recommended, as they can help in boosting vitality, supporting the tissues, and balancing both Vata and Kapha. It’s advisable to take them with warm milk to enhance absorption, sipped in the morning.
Diet can play a pivotal role. Warm, cooked foods rich in healthy fats, like ghee and sesame oil, might nourish your dhatus and calm Vata. Avoid cold, dry, or stale foods. Incorporating spices like ginger and turmeric can stimulate Agni (digestive fire) and aid detoxification.
Lifestyle modifications are important too. Gentle, restorative practices like yoga, focusing on slow controlled movements, could support your body while avoiding excessive strain. Breathwork, particularly “Nadi Shodhana” (alternate nostril breathing), balances both body and mind, especially Vata and Kapha.
Given your condition, regular Panchakarma, particularly basti (medicated enema) could offer some rejuvenation by eliminating excess Vata. But these therapies require guidance a qualified Ayurvedic practitioner.
If any therapies cause discomfort, pause and consult with healthcare professionals. Safety should remain a top priority, and any drastic changes should be monitored by you healthcare team.
HELLO,
Your symptoms- extreme tisse fragility , multi organ weakness, chronic fatigue, pain, poor healing, heart rhythm issues, and nervous instability- suggest a deep depletion of body tissues with aggravation of Vata dosha
1) What is happening in the body -Vata dosha governs all movement- nerve impulses, circulation, joint mobility, elasticity, and repair -When vaya becomes excessive and unstable (due to trauma, stress, toxins, overexertion, fasting, chronic illess, childbirth complications or toxin exposure), it dries out and weakens tissues -The glue (kapha) that holds cells together becomes deficient- leading to hyperelasticity, instability,Subluxation,joint pain, skin fragility etc -Agni(digestive /metabolic fire) becomes erratic, forming AMA (toxic sludge) that blocks nutrition to deeper tissues Graduallt, Ojas (vital life- essence and immunity) gets depleted- explaining fatigue,hypersensitivity,infections, and autoimmunity So, your disorder isn’t just in the joints- it’s a systemic loss of nourishment and stability
TREATMENT GOALS -pacify and stabilise vata dosha - rebuild tissues especially muscle , connective and bone ligament - Strengthen metabolism to improve absorption and nourishment - remove toxins gently, without depleting energy - restore Ojas - calm the mind and nervous system to prevent further derangement
INTERNAL MEDICATIONS
1) ASHWAGANDHA CHURNA= 1 tsp with warm milk twice daily = builds muscle and nerve tissue, pacify vata, improves strength, sleep, and resilience
2) SHATAVARI KALPA= 1 tsp with milk in morning =rejuvenated tissues, supports hormones, reduces inflammation calms pitta vata
3) BALA ROOT POWDER= 1 tsp with warm milk and oil is applied externally ln massage = strengthen nerves and connective tissue, improve stamina
4) GUDUCHI GHAN VATI= 1 tab twice daily after meals =anti inflammatory, detoxifying, boosts immunity, balances all doshas
5) AMALAKI RASAYANA= 1 tsp daily in morning = builds ojas, supports digestion , enhances tissue repair
6) MAHARASNADI KASHAYA= 15ml with warm water twice daily after meals = works on musculoskeletal pain, inflammation, nerve weakness
7) TRAYODASHNGA GUGGULU= 1 tab twice daily after meals = for joint stiffness, nerve pain, mild detox of toxin
8) BRAHMI VATI= 1 tab at night = calms mind, supports cognition, balances vata in brain
duration= usually 3 months
LIFESTYLE AND DAILY REGIMEN
KEEP WARM= avoid cold air, cold food, and cold bath REGULAR MEALS= Never skip meals, eat at same times daily ADEQUATE REST= but avoid total immobility- small, mindful movement is healing GENTLE OILING= before bath warm ksheerbala taila SLEEP = Early bedtime 10pm, avoid screens before sleep EMOTIONAL PEACE= soothing environment soft music aromatherapy
AVOID - fasting, raw salads, cold drinks, dry snacks, caffeine , alcohol - excess talking, loud sounds,stress, irregular routines -overstimulation or multi tasking vata gets aggravated
DIET -Warm, moist , mildly oily, freshly cooked, easy to digest - GRAINS= oats, rice, wheat, quninoa Avoid dry popcorn , crackers
PROTEINS= moong dal, red lentils, soft cooked beans, milk, ghee, nuts soaked
VEGETABLES= cooked root veggies, carrot, bean, yam, zucchini , pumpkin Avoid raw cruciferous veggies
FATS= ghee, sesame oil, olive oil- essential for tissue repair
SPICES= cumin, coriander, fennel, turmeric , cardamom, cinnamon Avoid very spicy foods
BEVERAGES= Warm water, herbal teas ginger tulsi cinnamon tea Avoid cold, dry, fermented , processed , leftover fried foods
SIMPLE HOME REMEDIES -warm milk with 1/2 tsp ghee + pinch of turmeric - night tonic - ginger tea with tulsi- mild detox, boosts immunity -Massage feet with sesame oil before sleep- improves sleep and calm vata -soak 5 almonds overnight- eat peeled in morning with milk - small ghee and rice porridge when digestion is weak- restorative and grounding
YOHA ASANAS Since you’re often bed bound or low energy, focus on gentle, grounding non exertional practices - supta baddhakonasana = opens hip gently - balasana= calming for vata - viparita karani= restores circulation - shavasana= daily with breath awareness
avoid overstretching- joints are already hyper mobile
PRANAYAM - nadi sodhana = balances doshas stabilise nerves - bhramari = calms anxiety, supports sleep - deep diaphragmatic breathing - improves oxygenation and energy Avoid Kapalabhati or bhastrika
Ayurveda sees your condition not as a genetic curse, but as a reversible energetic imbalance - though slow and delicate The approach is not to fight the disease but to rebuild your inner strength, nourish your tissues, and stabilise your essence Healing will be gradual- often noticeable in months not weeks but deeply transformative when consistent
DO FOLLOW
HOPE THIS MIGHE BE HELPFUL
THANK YOU
DR. MAITRI ACHARYA
In ayurveda we compare connective tissue disorders due to disturbed vata in asthi - majja dhatu and accumulation of ama ( toxins ) due to weak digestive fire Take Ashwagandha cap 1-0-1 Maharasnadi kashayam 15 ml with equal water twice daily after food CHYWANPRASH-1 tsp daily Balashwagandhadi tailam- gentle massage of whole body to be done
Connective tissue disorders, like Ehlers Danlos Syndrome, seen through the Ayurvedic lens, often involve an imbalance in Vata dosha, which governs movement, space, and air elements in the body. The pathways that move energy, known as nadis, and the seven tissue layers (sapta dhatus) are crucial here in this context. Weakness in these tissues can result from an impaired digestive fire (agni), leading to accumulation of toxins (ama).
You mention being a Vata-Kapha constitution; hence, addressing Vata first will be key because it deals with movement and nervous system management. You might start by focusing on oil therapies, as they can be grounding. Abhyanga, a self-oil massage, using warm sesame or Ashwagandha oil, can nourish tissues. Do this gently, 2-3 times a week, preferably in the morning before bathing.
Dietary adjustments could also be beneficial. Warm, cooked foods, and spices like turmeric, ginger, and garlic can support your digestive fire. Avoid raw salads, cold foods, and anything too dry or light. Eating at regular intervals and avoiding fasting or skipping meals is advisable.
Given the chronic infections and mold toxicity, strengthening your immune system will be pivotal. Herbs like Guduchi (Tinospora cordifolia) and Amalaki (Emblica officinalis) might help. They can be taken in powdered form, 1 tsp daily, mixed with warm water.
Lastly, therapy like Shirodhara, where warm oil is poured onto the forehead, could be calming for the nervous system. However, given your complex medical history, consult a local Siddha-Ayurvedic practitioner who can provide more in-depth support alongside your current medical care to tailor this accurately to your unique situation. It’s vital to coordinate this with your existing health team, especially since your condition is serious, involving multiple systems such as neurological and musculo-skeletal.
