Start with Sarivadi vati tab 1-0-1 after food Amruthadi Guggulu tab 1-0-1 after food Full body massage with normal coconut oil so that it will reduce excess vata
You can take
Sarivadi vati 1-0-1 Giloy tablet 1-0-1 Ashwagandha churna 1/2-0-1/2 tsp after food Shankapuspi syrup 10-0-10 ml Brahmi gritha 1 tsp -0-0 with warm water
Regular follow- up is required
Hlo,
Given your history of SLE with prior Class IV lupus nephritis, plus >6 months of hearing loss, memory problems, and fatigue, your symptoms deserve careful evaluation for neuro-otologic and neuropsychiatric lupus, while also ruling out medication effects and metabolic causes. I’ll outline (A) medical evaluations, (B) standard management.
A. Recommended Medical Evaluations (Important) 1. Lupus activity & inflammation Anti-dsDNA, C3, C4 ESR, CRP Urine routine + protein/creatinine ratio (even if nephritis is “recovered”)
2. Neuropsychiatric SLE (NPSLE) assessment Memory issues + fatigue can be due to lupus itself. MRI brain (with contrast if allowed)
Neurocognitive testing Antiphospholipid antibodies (ACL, β2-GP1, lupus anticoagulant)
3. Hearing loss work-up SLE can cause autoimmune inner ear disease Pure tone audiometry ENT evaluation Consider MRI internal auditory canal if asymmetric or progressive loss
4. Rule out reversible contributors Vitamin B12, Vitamin D Thyroid profile Review current medications (e.g., steroids, cyclophosphamide history)
B. Conventional Management (Overview) Depending on findings: - Optimize lupus control (immunosuppression if active disease) - Low-dose steroids or immunomodulators if NPSLE or autoimmune inner ear disease confirmed - Hearing aids if sensorineural loss is established - Cognitive rehabilitation, sleep optimization, fatigue management Treat deficiencies (B12, D)
Ayurvedic prescription -
1. Brahmi (Bacopa monnieri) Dose: 250 mg capsule twice daily after meals Benefit: Memory, concentration, neuroprotection Safe for kidneys in standard doses
2. Mandukaparni (Centella asiatica) Dose: 500 mg capsule once daily after breakfast Benefit: Cognitive clarity, fatigue, microcirculation
3. Guduchi (Tinospora cordifolia) – low dose Dose: 300 mg capsule once daily Benefit: Immunomodulation, fatigue ⚠️ Avoid during active flare without physician supervision
4. Shankhpushpi syrup (alcohol-free) Dose: 10 ml at bedtime Benefit: Memory, sleep quality, mental calm
5. Nasya Anu Taila Dose: 2 drops in each nostril morning, empty stomach, 5 days/week Benefit: Supports cognition, sense organs (including ears)
Diet & Lifestyle (Very Important) Warm, freshly cooked food Adequate protein (as per nephrologist guidance) Avoid fasting, cold exposure, excess mental stress Gentle yoga, pranayama (nadi shodhana) Strict sleep routine
When to Seek Urgent Care Rapid worsening of hearing Confusion, seizures, severe headaches Sudden drop in urine output or swelling
Tq
Hello Thanks for sharing your story so clearly. I get why you’re worried – having lupus, a history of kidney issues from it, and now dealing with hearing loss, memory problems, and constant tiredness is a lot to handle. But dont worry we are here to help you out 😊
YOUR CONCERN
Diagnosis: Lupus (SLE) Past: You had Class IV Lupus Nephritis (but you’re better now). Fresh complaints –Hearing loss – Memory problems –Low energy/always tired How long?: More than 6 months What caused it?: You haven’t found anything yet.
First, don’t panic!
– These symptoms don’t automatically mean your kidney lupus is back. – With lupus, hearing and memory problems can happen. It could be because: - Lupus affecting your brain - Lupus affecting your inner ear - Side effects from your meds - Just being tired or having long-term inflammation
But, because lupus can mess with your nervous system, inner ear, and blood vessels, we can’t just ignore these symptoms.
What might be going on
1. Autoimmune Inner Ear Disease: Lupus can mess with tiny blood vessels in your inner ear, leading to hearing loss that comes on slowly or quickly.
2. Lupus affecting your brain (Neuropsychiatric Lupus - NPSLE): This can cause: - Memory problems - Brain fog - Trouble focusing
3. Medication side effects: Long-term use of steroids or other meds can make you feel slow or tired.
4. Always tired & Anemia: Feeling tired and having anemia is common with lupus, even when it’s not flared up.
FURTHER TESTS
See an ENT / Audiologist (Ear Doctor) – They’ll do hearing tests to see how well you hear different sounds and words. – They’ll also check your eardrum. – This helps figure out if it’s a nerve problem or something in your outer/middle ear.
Blood Tests: - Lupus markers (ANA profile, anti-dsDNA, C3, C4) - Inflammation markers (ESR, CRP) - Vitamin B12, Vitamin D - Thyroid check - Hemoglobin (to check for anemia)
Kidney Checks (Standard, but essential): * Urine test * Urine protein levels * Creatinine in your blood * This just makes sure your kidney lupus is still clear.
AYURVEDIC UNDERSTANDING
Ayurveda sees this as:
* An imbalance that affects your nervous system and vital energy. * Supportive Ayurvedic things (ONLY with modern medicine): * Herbs for memory * Gentle energy-building treatments * Eating foods that reduce inflammation * Managing stress and getting good sleep
Your daily life & self-care (IMPORTANT):
* Get enough sleep. * Balance your activity (don’t overdo it). * Eat anti-inflammatory foods. * Reduce stress (yoga, breathing). * Stay out of the sun or protect yourself.
With the right tests, many of these issues can be treated or managed. Finding things early means a better recovery. Good support really improves your quality of life.
Your symptoms need a quick and thorough check, not just someone saying it’s fine. The good news is you’re paying attention to your body – that’s the most important first step.
With the right plan, getting stable and feeling better in the long run is totally possible.
Warm Regards Dr Snehal Vidhate
I UNDERSTAND YOUR CONCERN AND YOUR HISTORY OF SLE WITH PAST KIDNEY INVOLVEMENT REQUIRES A VERY CAREFUL AND BALANCED APPROACH HEARING LOSS MEMORY ISSUES AND LOW ENERGY USUALLY INDICATE LONG STANDING IMMUNE IMBALANCE AND NERVOUS SYSTEM WEAKNESS EVEN AFTER NEPHRITIS RECOVERY
IT IS IMPORTANT TO CONTINUE REGULAR FOLLOW UP WITH YOUR RHEUMATOLOGIST AND NEPHROLOGIST AND TO GET BASIC CHECKS LIKE HEARING ASSESSMENT BRAIN EVALUATION IF ADVISED VITAMIN B12 VITAMIN D THYROID PROFILE AND RENAL FUNCTION TO RULE OUT REVERSIBLE CAUSES
FROM AN AYURVEDIC POINT OF VIEW THE FOCUS IS ON NOURISHING THE NERVOUS SYSTEM SUPPORTING MEMORY STRENGTHENING IMMUNITY AND MAINTAINING KIDNEY SAFETY MEDICINES SHOULD ALWAYS BE INTRODUCED GRADUALLY AND UNDER SUPERVISION
BRAHMI GHRITA HALF TEASPOON ONCE DAILY IN THE MORNING WITH WARM WATER
ASHWAGANDHA CHURNA ONE FOURTH TEASPOON ONCE DAILY AFTER FOOD WITH WARM WATER ONLY IF KIDNEY REPORTS ARE STABLE
MANDUKAPARNI VATI ONE TABLET TWICE DAILY AFTER FOOD
CHANDRAPRABHA VATI ONE TABLET TWICE DAILY AFTER FOOD ONLY IF RENAL FUNCTION IS NORMAL
PUNARNAVA MANDOOR ONE TABLET ONCE DAILY AFTER LUNCH
IMPROVEMENT IN MEMORY HEARING CLARITY AND ENERGY IS GRADUAL AND USUALLY TAKES A FEW MONTHS CONSISTENT MONITORING IS ESSENTIAL GIVEN YOUR AUTOIMMUNE BACKGROUND AND ANY WORSENING SHOULD BE REVIEWED PROMPTLY
1.Kanchnar guggulu 1 tab twice daily with water after meals 2.Brahmi vati 1 tab twice daily with water after meals 3.Ashwagandha churna 3/4 tsp twice daily with water after meals 4.Saraswatarishta 20 ml with 20 ml water twice daily after meals
🥗 Diet & Lifestyle
Diet: - Favor light, warm, easily digestible foods (mung dal khichdi, vegetable soups). - Include brain‑supportive foods: soaked almonds, walnuts, cow’s ghee. - Avoid excess sour, fried, packaged foods.
Routine: - Gentle yoga: Anulom Vilom, Bhramari, Shavasana. - Daily oil massage (Abhyanga) with sesame or Brahmi oil for calming Vata. - Regular sleep (7–8 hrs), avoid late nights.
- Mental health: Journaling, mantra chanting (“Om Namah Shivaya”), meditation for stress balan
Given your history of SLE (Lupus) and Nephritis, your current symptoms suggest CNS (Central Nervous System) involvement or Drug-Induced Neurotoxicity from past immunosuppressants.
Before starting treatment, please ensure you have checked: 1 Pure Tone Audiometry: To rule out Autoimmune Inner Ear Disease (AIED). 2 MRI Brain: To rule out any vascular changes or atrophy related to CNS Lupus. 3 Vitamin B12 & D Levels: Chronic Lupus patients often have deficiencies affecting memory and nerves.
Treatment Protocol (Safe for kidneys) 1. Internal Medicines Maha Kalyanaka Ghrita: 1 teaspoon with warm water/milk on an empty stomach in the morning. (Nourishes the Brain & Nerves). Guduchi Satva: 500mg (1 pinch) twice daily with water. (Safe immunomodulator to maintain remission). Saraswatarishta: 15ml mixed with 15ml water, twice daily (after food). (Boosts Memory & Auditory blood flow).
2. External Therapies (Crucial) -Nasya (Nasal Drops): Put 2 drops of Ksheerabala Tailam (101) in each nostril daily. The nose is the direct route to the brain.
-Karna Poorana (Ear Drops): Put 2-3 drops of Bilva Tailam in ears at night to treat hearing loss.
3. Diet Eat Walnuts, Soaked Almonds and Cow Ghee daily. Your depleted nerves need these healthy fats to regenerate.
Regards Dr Gursimran Jeet Singh MD Panchakarma
