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I've AOSD since march 2023 and i face some problems on ongoing medicines
Immunodeficiency
Question #27571
220 days ago
586

I've AOSD since march 2023 and i face some problems on ongoing medicines - #27571

Sarthak Chauhan

I've AOSD (adult oncet still's disease) My current medicines Tofacitinib Prednisolone Methotrexate Folic acid Amlodipine CCM Alendronate Pantaperozole But I've some problems Continuous muscle pain Toe pain Lower back pain Neck pain Lower grade fever Skin allergy Ulcer Mood swings Blury things Body vibration Excessive sweating Thirsty mouth Weakness

Age: 22
Chronic illnesses: Adult oncet still's disease
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Doctors' responses

Hello, A s you are already on medications, please meet an ayurveda doctor in person and under his/her start taking panchakarma treatment. This will help you to get lot better control over the symptoms. Take care, Kind regards.

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Managing AOSD with the medications listed can indeed lead to both effectiveness and certain challenges. The symptoms you’ve noted suggest possibly a combination of side effects or unresolved issues of the disease itself. Tofacitinib, as well as Methotrexate, can cause muscle and joint pains. Skin allergies, ulcers, and perhaps blurred vision might be linked to steroid (Prednisolone) use. Mood swings and excessive sweating may be common side effects of these medications.

From an Ayurvedic perspective it’s crucial to address the body’s overall balance to lessen these symptoms. First, begin paying special attention to your digestive fire or ‘Agni’, as it plays a vital part in your immunity and can affect reactions to medications. Start by incorporating warm, easily digestible foods. Begin meals with a small piece of fresh ginger with salt and lemon, which might help in enhancing Agni. Avoid cold, stale, processed foods and favor freshly cooked meals.

To ease muscle and joint pain, you can consider daily self-massage or “Abhyanga” with warm sesame or Mahanarayan oil, gentle yet consistent. Increase intake of warm water with pinch of turmeric, to help reduce inflammation and clear Ama (toxins).

For thirst and mouth dryness, sips of warm water with a few fennel seeds throughout the day can be soothing. To counter mood swings and anxiety, practicing “Pranayama” or deep breathing exercises, especially “Nadi Shodhana”, daily can be helpful.

Enhancing rest, ensuring adequate sleep, and incorporating restorative activities, such as yoga or meditation, helps balance body and mind. Make gradual lifestyle changes after running these ideas with your physician, ensure no conflicts with your ongoing treatments. Seek regular medical check-ups for moderation of your current medicines, especially given the complexity of AOSD treatments. When new symptoms develop or existing ones worsen, consult urgently with a healthcare provider.

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It looks like your current medication regimen for Adult Onset Still’s Disease (AOSD) is extensive and you’re experiencing quite a few side effects. In the Siddha-Ayurvedic framework, we often look at such symptoms as manifestations of imbalances in the doshas and energy channels. AOSD symptoms may relate to an imbalance in the vata and pitta doshas, which can lead to erratic agni and disturbed sapta dhatus.

Firstly, examine your diet closely. Avoid foods that can elevate vata and pitta. These include very spicy, sour, and processed foods. Instead, focus on cooling, soothing foods such as ghee, coconut water, and whole grains like rice. Well-cooked vegetables with mild spices can help stabilize your digestion and reduce inflammation.

For muscle pain and body vibration, applying warm sesame oil, gently massaged over the painful areas, can soothe the vata imbalance. Meanwhile, herbal formulations like Ashwagandha and Shatavari can be beneficial. You should consume them in powder form, about 1/4 teaspoon mixed with warm milk, morning and evening.

Your fever and sweating align with heightened pitta, and neem leaves can be brewed into a tea to help cool the system. However, given your prescription of methotrexate and other medications, consult your healthcare provider before introducing herbal supplements.

For mood swings and blurry vision, simple breathing exercises such as pranayama can be practiced twice daily to help balance mental doshas. Deep breathing encourages blood flow and aids in stress reduction, addressing both mental clarity and mood regulation.

Given the long list of symptoms—especially those that may relate to your medications’ side-effects—working in tandem with your healthcare provider is crucial. Track the onset of each symptom, and keep them informed, as there could be potential adjustments needed in your medicinal dosages.

In Ayurveda, a holistic approach helps, yet serious new symptoms or significant side effects warrant immediate professional medical evaluation. Always consider the urgency of newly arising symptoms alongside ongoing ayurvedic treatments.

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Miles
9 hours ago
Really helpful advice! Simple dietary tips & lifestyle changes are working wonders. Feeling much clearer about managing symptoms now, thx!
Really helpful advice! Simple dietary tips & lifestyle changes are working wonders. Feeling much clearer about managing symptoms now, thx!
Jayden
1 day ago
Thanks for the detailed response! The Ayurvedic approach seems promising. I appreciate the clear guidance on dosage and treatment steps.
Thanks for the detailed response! The Ayurvedic approach seems promising. I appreciate the clear guidance on dosage and treatment steps.
Willow
1 day ago
Thanks so much for the detailed advice! Explained everything in a way I could understand. Feeling less worried about my symptoms now. Appreciate it!
Thanks so much for the detailed advice! Explained everything in a way I could understand. Feeling less worried about my symptoms now. Appreciate it!
Xanthe
1 day ago
Thanks a ton for breaking down the issue for me! Your advice on diet changes and testing was super clear. Finally feel like I've got a plan.
Thanks a ton for breaking down the issue for me! Your advice on diet changes and testing was super clear. Finally feel like I've got a plan.